The National Leprosy Control Programme (NLCP) has been in operation since 1955, as a centrally aided programme to achieve control of leprosy through early detection of cases and DDS (dapsone) monotherapy on an ambulatory basis. The NLCP moved ahead initially at a slow pace, presumably for want of clear-cut policies or operational objectives for nearly two decades. The programme gained momentum during the Fourth Five Year Plan after it was made a centrally-sponsored programme. In 1980 the Government of India declared its resolve to "eradicate" leprosy by the year 2000 and constituted a Working Group to advise accordingly. The Working Group submitted its report in 1982 and recommended a revised strategy based on multi-drug chemotherapy aimed at leprosy "eradication" through reduction in the quantum of infection in the population, reduction in the sources of infection, and breaking the chain of transmission of disease. In 1983 the control programme was redesignated National Leprosy "Eradication" Programme with the goal of eradicating the disease by the turn of the century. The aim was to reduce case load to 1 or less than 1 per 10,000 population.
To strengthen the process of elimination of leprosy in the country, the first World Bank supported project was introduced in 1993. On completion of this project, the 2nd phase of project with World Bank support was started in 2001-02 which ended in December 2004. Since then, the programme is being continued with Government of India funds with technical support from WHO and International Federation of Anti-Leprosy Association (ILEP) organizations. The programme has been integrated with general health care system in 2002-03, since then leprosy diagnosis and treatment services are available at all PHCs and government hospitals.
The components of the programme are as follows :
- Decentralized integrated leprosy services through general health care system;
- Capacity building of all general health services functionaries;
- Intensified information, education and communication;
- Prevention of disability and medical rehabilitation; and
- Intensified monitoring and supervision.
After introduction of MDT, the recorded case load of leprosy came down from 57.6 cases per 10,000 population in 1981 to less than one at the national level in December 2005, and the country could achieve the goal of leprosy elimination at national level as set by the National Health Policy (2002). 33 states/UTs achieved the status of leprosy elimination. Only 2 States/UTs viz. Chattisgarh and Dadra & Nagar Haveli are yet to achieve elimination
A total of 209 high endemic districts were identified for special action during 2012-13. 1792 blocks and 150 urban areas were identified for special activities, i.e., house to house survey along with IEC and capacity building of the workers and volunteers.
Major initiatives
Major initiatives taken are as follows :
- More focus has now been given to new case detection than prevalence which only gives the number of cases on record at a point in time. The new case detection rate is the main indicator for programme monitoring.
- Treatment completion rate has been taken as an important indicator, to be calculated by states at yearly basis.
- More emphasis is being given on providing disability prevention and medical rehabilitation (DPMR) services to leprosy affected persons. The aid provided is as follows :
- Dressing materials, supportive medicines and ulcer kits are provided to leprosy affected ,persons with ulcers and wounds. These services are also provided to leprosy affected persons residing in self settled colonies.
- Micro-cellular rubber footwear is provided for protection of insensitive feet. 41 NGOs in the country and 42 Government Medical Colleges have been strengthened for providing reconstructive surgery services to leprosy affected persons for correction of their disability, thus totalling to 83 centres for conducting reconstructive surgeries in the country.
- An amount of Rs. 5000/- is provided as incentive to each leprosy affected person from BPL family undergoing reconstructive surgery in these identified institutions to compensate for loss of wages.
- Support is also provided to government institutions/ PMR centres in the form of Rs 5000/- per reconstructive surgery conducted.
- ASHAs have been involved in bringing out suspected leprosy cases from their villages for diagnosis and treatment at PHC and follow-up of confirmed cases for their treatment completion. To facilitate the involvement of ASHA in the programme, they are being paid incentive money as below :
- On confirmed diagnosis of case brought by them - Rs. 100/-
- On completion of full course of treatment of the case within specified time - PB leprosy case - Rs 200/-, and MB leprosy case Rs 400/-
- There are 612 self settled colonies in the country where more than 50,000 leprosy affected persons reside. Free medical facilities like care of ulcers, self care training, counselling and MCR footwear are provided to leprosy affected persons residing in these colonies through para- medical workers/NGOs on weekly/fortnightly basis.
- Intensive !EC campaign with a theme "Towards Leprosy Free India" has been carried out towards further reduction of leprosy burden in the community, early reporting of cases and their treatment completion, provision of quality leprosy services and reduction of stigma and discrimination against leprosy affected persons. Awareness generation activities are carried out through mass media and local media.
Urban leprosy control programme
The urban leprosy control programme was initiated in 2005 to address the complex problem of larger population size, migration, poor health infrastructure and increasing leprosy cases in urban areas.
Under this component, assistance is provided to urban areas having population size of more than 1 lakh. For the purpose of providing graded assistance, the urban areas are grouped in four categories i.e. Township I, Medium Cities I, Medium Cities II, and Mega Cities.
Disability prevention and medical rehabilitation (DPMR)
The main activities carried out under DPMR are as follows :
- Implementation of DPMR activities as per guidelines and reporting its outcome eg. treatment of leprosy reaction, ulcers, physiotherapy, reconstructive surgery and providing MCR footwear.
- Integrating DPMR services - There are provision of services to persons with disability by various departments under different ministries. Convergence of NLEP services into NRHM facilitates this integration.
- To develop a referral system to provide prevention of disability services to all leprosy disabled persons in an integrated set-up.
The DPMR activities are planned to be carried out in a three tier system i.e. the primary level care (First level), secondary level care (Second level) and the tertiary level care (Third level). The primary level care institutions are all PHCs, CHCs, Sub-divisional hospitals and urban leprosy centres/dispensaries. The secondary level care institutions are all District Head Quarter Hospitals and District Nucleus Units. The tertiary level care institutions are :
- Central Government Institutes (CLTRI Chingalpettu and RLTRI at Aska/Gauripur/Raipur)
- ICMR Institute JALMA, Agra.
- ILEP supported Leprosy Hospitals.
- All PMR Institutes and departments of medical colleges.
The other support units are :
- Orthopaedics and plastic surgery departments of medical colleges.
- Identified NGO institutions.
- All National Institutes under Ministry of Social Justice and Empowerment.
- Contractual surgeons skilled in RCS a'nd Rehabilitation Programmes.
The referral system in NLEP is as shown in Fig. 1.
Decentralization and institutional development Integration of leprosy services into the general health care system has been completed. Services are available from all PHCs, and other health centres where a medical officer is available. District nucleus has been formed to supervise and monitor the programme. State leprosy societies formed will merge with the state health society under the National Rural Health Mission.
Programme Implementation Plan for 12th Plan Period (2012-13 to 2016-17)
As the disease is still prevalent with moderate endemicity in about 15 per cent of the country, the plan objectives are set as follows
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